4brokenhearts wordpress.com

5brokenhearts A family affected by three generations of Heterotaxy Syndrome an extremely rare laterality disorder that affects only four people in a million. In our family it affects my three children, my grandchild, and myself.

A family affected by three generations of Heterotaxy Syndrome - an extremely rare laterality disorder that affects only four people in a million. In our family it affects my three children, my grandchild, and myself.

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LINKS TO WEBSITE

Finding Answers to Heterotaxy, Polysplenia Syndrome

Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Tuesday, May 14, 2013. Tuesday, December 4, 2012. A dear friend of mine is making hand-crafted Christmas ornaments.

ThE WaRnErs

Wednesday, September 26, 2012. I have been working this video for over a month now and I am SO excited to finally get to share it with everyone! Sunday, August 12, 2012. Long busy week for Ryker. The last week has been an extremely eventful and sad week for my sweet little Ryker! He has been through so much! When we came back up to see him he looked great! .

Heterotaxy Syndrome The Story of a little boy born with Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome. I wear red for Logan. February 2, 2013 by kristenspyker. The Month of February is Congenital Heart Disease Awareness Month. Today had me thinking about the last 3 years and everything we have been thru.

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5brokenhearts A family affected by three generations of Heterotaxy Syndrome an extremely rare laterality disorder that affects only four people in a million. In our family it affects my three children, my grandchild, and myself.

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A family affected by three generations of Heterotaxy Syndrome - an extremely rare laterality disorder that affects only four people in a million. In our family it affects my three children, my grandchild, and myself.

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The site had the following in the homepage, "A family affected by three generations of Heterotaxy Syndrome an extremely rare laterality disorder that affects only four people in a million." I noticed that the web site stated " In our family it affects my three children, my grandchild, and myself." They also stated " Lots going on these days! April 30, 2014. Is watching your children suffer through congestive heart failure and open-heart surgery a blessing? Is watching them turn blue and fight for every breath a blessing? Is watching them waste away before your very eyes a blessing? As far ."

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aracnophilia

Friday, October 26, 2012.

Ava Alexandra Navarrette The story of a baby girl with Heterotaxy who died only 22 hours after birth.

The story of a baby girl with Heterotaxy who died only 22 hours after birth. Asymp; Leave a comment. CHLA made no mention of ECMO.

Zoe Fiona-Graces Story

Thursday, March 5, 2015. Our ongoing and everlasting journey. Our ongoing and everlasting journey. These hospital appointments suck the life out of you. We have had appointments sinc.

BrooklyntheBrave and her journey with Heterotaxy

BrooklyntheBrave and her journey with Heterotaxy. The journey of a little girl who has to overcome what life has thrown at her with Heterotaxy-Right Atrial Isomerism. Mark Cummings half the heart twice the determination. Friday, October 19, 2012. Friday, October 12, 2012. Tuesday, October 9, 2012. Brooklyn weighed in at 2lbs 12oz yesterday. We spent over 3hrs with him. He was amazing! On Mond.