averysfight wordpress.com

Averys Fight our journey with HoFH

In December 2014, our then six-year old daughter was diagnosed with a very rare genetic disease called Homozygous Familial Hypercholesterolemia, or HoFH. HoFH effects roughly 1 in 1 million individuals worldwide. Currently, there are approximately 400 cases in the United States. Upon learning of her diagnosis, I was quickly bombarded with a barrage of emotions

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Mackenzie Ames

Thoughts From a Landlocked Sailor. Thoughts from a Freshly Broken Heart. Wanna Grab a Drink? Dating on Land vs.

Ive Got a Lovely Bunch of Coconuts Thoughts From a Landlocked Sailor

Thoughts From a Landlocked Sailor. Have you tried Bumble? December 17, 2015.

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Averys Fight our journey with HoFH

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In December 2014, our then six-year old daughter was diagnosed with a very rare genetic disease called Homozygous Familial Hypercholesterolemia, or HoFH. HoFH effects roughly 1 in 1 million individuals worldwide. Currently, there are approximately 400 cases in the United States. Upon learning of her diagnosis, I was quickly bombarded with a barrage of emotions

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The site had the following in the homepage, "In December 2014, our then six-year old daughter was diagnosed with a very rare genetic disease called Homozygous Familial Hypercholesterolemia, or HoFH." I noticed that the web site stated " HoFH effects roughly 1 in 1 million individuals worldwide." They also stated " Currently, there are approximately 400 cases in the United States. I hope this blog will help us document our journey for ourselves and our daughter and all those other families who are or will be diagnosed with HoFH. Leave a Reply Cancel reply."

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