We are a family of five. Mum, Dad and three beautiful little girls, two of whom have diastrophic dysplasia, a rare form of dwarfism. This blog was started during my pregnancy with my second daughter and mainly talks about the ways in which dwarfism affects our lives. Wednesday, April 27, 2016. Please do not hesitate to contact me to discuss these issues further,. Tuesday, February 16, 2016. Within a few days of writing my letter. Madeline has certainly benefited from the letter .

We found out at 17 weeks of pregnancy that our daughter had a form of Skeletal Dysplasia. At birth, it was confirmed to be Diastrophic Dysplasia, a rare form of dwarfism. Sunday, October 31, 2010.

She is more precious than rubies; nothing you desire can compare with her. This year, like every year in the past, I ponder what life would have been like if Cliff was still with us and I feel immense sadness over all of the unanswered questions I still have for him. The same gaping hole in my heart that will never be filled.