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We are charity which aims to support children and their families living with the genetic ageing disorder, Progeria. We also support the Progeria Family Circle. In organising an annual reunion for the families living in Europe. Progeria UK was registered with the Charity Commission. In August 2006 by the parents of Hayley Okines. Under our previous name of Hayleys Hope with our work dedicated to raising funds for the Progeria Research Foundation.
Literature, Words, Good food and Wine and other delicious conundrums. Taught me so many lessons in life. I have always admired her tenacity, judiciousness. She has travelled extensively from an early age. And has reminded me of the simple pleasures of. To openly accept each other as souls in orbit,. She embraces life with such abundance.
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