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Simply Loving Spencer Living with Cranial Facial Syndrome

Spencer is diagnosed with Pfeiffer Syndrome type 1. This syndrome affects the sutures in the skull, otherwise called Craniosynostosis and the mid section of his face. His intellegence is normal and he will lead a forfilled life. Pfeiffer syndrome is a rare genetic condition that affects 1 in 100,00 babies. He will require a number

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Simply Loving Spencer Living with Cranial Facial Syndrome

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Spencer is diagnosed with Pfeiffer Syndrome type 1. This syndrome affects the sutures in the skull, otherwise called Craniosynostosis and the mid section of his face. His intellegence is normal and he will lead a forfilled life. Pfeiffer syndrome is a rare genetic condition that affects 1 in 100,00 babies. He will require a number

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The site had the following in the homepage, "Please write your experiences down, its an adventure take in every moment." I noticed that the web site stated " our babies are still here, for that we must be grateful." They also stated " We plan to teach Spencer how to be resilliant to judgment and maintain a smile on his face throughout whatever obstacles he has to endure. We are grateful for the mildness of Spencers condition but we dont take for granted what could be in years to come. We can only do one thing for Spencer and that is to simply love him."

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