growingupblindwitheme wordpress.com

Growing Up Blind in a rare LCA world

Eme has been robbed of her sight by LCA-CRB1, a very rare genetic disease. By age 3, she was already blind. LCA-CRB1 has no treatment. A gene therapy clinical trial is being conducted for LCA-RPE65 right now that is working and is giving blind kids like Eme their sight back! By replacing the mutatedbroken gene
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EmesArmy fighting childhood blindness kids fighting blindness from RARE disease LCA

Kids fighting blindness from RARE disease LCA. She walks with a white cane and is learning Braille.

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Growing Up Blind in a rare LCA world

DESCRIPTION

Eme has been robbed of her sight by LCA-CRB1, a very rare genetic disease. By age 3, she was already blind. LCA-CRB1 has no treatment. A gene therapy clinical trial is being conducted for LCA-RPE65 right now that is working and is giving blind kids like Eme their sight back! By replacing the mutatedbroken gene

PARSED CONTENT

The site had the following in the homepage, "Eme has been robbed of her sight by LCA-CRB1, a very rare genetic disease." I noticed that the web site stated " By age 3, she was already blind." They also stated " A gene therapy clinical trial is being conducted for LCA-RPE65 right now that is working and is giving blind kids like Eme their sight back! By replacing the mutatedbroken gene with a good copy of the gene, blind kids can see again! Join us and help raise awareness of childhood blindness from LCA Lebers Congenital Amaurosis."

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