hopeforgavin wordpress.com

Hope for Gavin - Jan Ferds Journey Living with Tay Sachs

Living with Tay Sachs

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The Remaly Family

Saturday, August 15, 2015. Today Otay Ranchh hosted several preseason games. Kailani did not cheer for her preseason game today because the girls did not have very many practice days to review cheers. We did stay at the field to watch a few of the other games. It was very hot! Friday, August 14, 2015.

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Hope for Gavin - Jan Ferds Journey Living with Tay Sachs

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Living with Tay Sachs

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The site had the following in the homepage, "Hope for Gavin Jan and Ferds Journey." I noticed that the web site stated " Highlights from the TSGT Progress Update February 2012." They also stated " March 20, 2012 in Uncategorized by Darryl Y. The Tay Sachs Gene Therapy Consortium continues to make many hopeful and successful progress, but TIME is of essence for our kids. Here are highlights of the progress update as of February 2012. The full report is available through http www. Tay Sachs Gene Therapy Consortium Update."

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