jamesmarquardt wordpress.com

James Our journey with Hunter Syndrome MPS II

Our journey with Hunter Syndrome MPS II

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The site jamesmarquardt.wordpress.com presently has a traffic classification of zero (the smaller the more users). We have analyzed nineteen pages within the web site jamesmarquardt.wordpress.com and found one website referencing jamesmarquardt.wordpress.com.
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Lysosomal Diseases NZ - Home

What are lysosomal storage diseases? Lysosomal storage diseases are inherited genetic defects that result in an enzyme deficiency, which prevents cells from performing their natural recycling function. Approximately 180 New Zealand families are currently affected. Campaign for access to therapies for our diseases. 28th February 2017 - Pharma Company gives up on Pharmac. Rare Disease Epidemiology - 2nd Edition.

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James Our journey with Hunter Syndrome MPS II

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Our journey with Hunter Syndrome MPS II

PARSED CONTENT

The site had the following in the homepage, "Our journey with Hunter Syndrome MPS II." I noticed that the web site stated " Three years on from James Bone Marrow Transplant." They also stated " It was three years ago last week that James had his Bone Marrow Transplant at Starship Hospital. Were doing good! Its not without its challenges still. schooling, adjusting to a cochlear implant, ongoing toileting issues, and then the serious issues that JAmes will need two new heart valves and a C1 and C2 vertebrae replacementfusion are in our future."

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