My life in general, things I like to write about. This is NOT just about Lupus. I share my stories, prose, art, craft and poetry too. Today I ask for help from all Lupus Patients, Friends and Families. I AM ONE OF THEM. I try not to allow Lupus to stop me doing things but oh my did I learn a lesson today. I got to the station and found.

The CMT-UK International Website - info About HNPP and Other resources. HMSN - HNPP info at NDC, Washington University, St. US National Library Of Medicine - Genetics Home Reference. An International Hnpp Yahoo Email Group. Hereditary neuropathy and CMT Facebook Group - Membership Required. CMT and HNPP - Blogs.

There is not a lot of information available so the more we can share the more we can help each other and help in the research process. We would love to hear from you too. Tuesday, June 10, 2014. I will let you know if I hear back or if anything changes on the website. Friday, June 6, 2014. In the second chapter .

Names and locations may well have been changed to protect anonymity, and all Doctors and health professionals names should be protected too. Inspiration for this blog was drawn from the Personal Stories page.

On August 22, 2014. On August 22, 2014. On August 10, 2014. Big Bertha, ex-tropical storm, has been getting .

Informatieve blog over HNPP, aangevuld met persoonlijke ervaringen. Het wordt van 0 starten, maar ik hoop weer een arts te vinden, die mij in mijn geheel beoordeelt en niet enkel op neurologisch vlak. NHS DNA scheme to fight cancer and genetic diseases. Health editor, BBC News website.

February 23, 2012 by leaf27. Rare disease day rolls around again, and this year it is on that very special day in a leap year, 29th February. For more information please visit. Read biographies of those involved in the video. July 21, 2011 by brian1850. What is peripheral Neuropathy? Some forms of neuropathy involve damage to only one nerve and are called mononneuropathie.