nfededucator wordpress.com

National Foundation for Ectodermal Dysplasias Supporting You. Supporting Each Other.

Supporting You. Supporting Each Other.

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Huxman Family

A family of six enjoying life and determined to spread awareness about Ectodermal Dysplasia, and our life with two children having EEC Syndrome. Saturday, September 8, 2012. Less than a month away. Friday, June 1, 2012.

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National Foundation for Ectodermal Dysplasias Supporting You. Supporting Each Other.

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Supporting You. Supporting Each Other.

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The site had the following in the homepage, "Camp Discovery to the Rescue! August 7, 2015." I noticed that the web site stated " When I was six years old, I was officially diagnosed with ectrodactyly-ectodermal dysplasia-cleft lippalate syndrome, also referred to as EEC syndrome." They also stated " As most of you already know, EEC effects ones teeth, hair, nails, sweat glands, tear ducts and skin. Missing our bus to the airport so we wouldnt have to go. Although camp is but one week out of the entire."

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