Submit or Remove a Blog. Welcome to Search Our Hearts. A directory of Congenital Diaphragmatic Hernia Community Blogs started and maintained by friends, family and organizations of CDH survivors and angels.

Our CDH fighter Little A. Happy New Year my love! January 2, 2014. This year has been such a roller coaster. We started the year off with we all being in the winter shut down. You were getting your monthly RSV shots, we all had to shower as soon as we return from work, shopping , school and sanitizers were everywhere. It was so hard but we survived. Though spring came late, we all rushed out the door as fast as we could. You are an independent soul, a fighter, you perseve.

At 21 weeks gestation, our baby girl Sunni was diagnosed with a Congenital Diaphragmatic Hernia. This is her story documented with all the ups and downs that she and her family will face together. Monday, April 7, 2014. Its been almost a YEAR! I think I have been putting this off for long enough. My last post was nearly a year ago. My, my, my; how things have changed- for the better HALLELUJAH! Next blog will be about how she is now. Saturday, May 18, 2013.

Since this past summer, he has been walking as his primary method of mobility and is slowing defining muscles which he had never properly used before.