Mr. Snuggles- Zane Leland Madaus Costello Syndrome G12A, History of Neuroblastoma, Enlarged Heart, Laryngo Tracheomalcia, Severe sleep apnea, severe RefluxGERD, optic Nerve Hypoplasia mostly blind
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Thursday, August 13, 2015. The CCHS community is in mourning now. A young mother with two small children had CCHS. She somehow went to sleep without hooking herself up to her ventilator and passed away. I did not know her and had no interactions with her but somehow it has hit me hard. What happens if they get in their car, have an accident and are knocked unconscious? As a fellow CCHS mom said, there has got to be a better w.
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Mr. Snuggles- Zane Leland Madaus Costello Syndrome G12A, History of Neuroblastoma, Enlarged Heart, Laryngo Tracheomalcia, Severe sleep apnea, severe RefluxGERD, optic Nerve Hypoplasia mostly blindDESCRIPTION
Costello Syndrome G12A, History of Neuroblastoma, Enlarged Heart, Laryngo Tracheomalcia, Severe sleep apnea, severe RefluxGERD, optic Nerve Hypoplasia mostly blind by ShannonKPARSED CONTENT
The site had the following in the homepage, "Costello Syndrome G12A, History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe RefluxGERD, optic Nerve Hypoplasia mostly blind." I noticed that the web site stated " What Mayo Clinic Did For Us." They also stated " OMSLife Foundation Conference in Cinncinati, OH 2015. Zane is doing soooo well! April 30, 2014. I am so sorry I have not updated Zanes webpage in a very long time! These ."ANALYZE MORE BUSINESSES
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